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Diabetes Care:“丧偶式教育”还不够?孩子患糖尿病了,母亲职场工作时间显著减少受挫明显,父亲却毫无影响!

2021-12-19 MedSci原创 MedSci原创

糖尿病是一种慢性病,需要持续监测以尽量减少急性和长期的负面影响。当一个年幼的孩子被诊断出患有糖尿病时,这种疾病的自我管理是不可能的。因此,意味着父母的任务和负担要明显增加。为此,

糖尿病是一种慢性病,需要持续监测以尽量减少急性和长期的负面影响。当一个年幼的孩子被诊断出患有糖尿病时,这种疾病的自我管理是不可能的。因此,意味着父母的任务和负担要明显增加。为此,有研究者设计了一份评估糖尿病发病前和发病后第一年父母的职业和财务状况的调查问卷,分发给所有诊断年龄小于14且糖尿病病程至少为12个月的德国儿童家庭,用来评估对父母的影响。

研究参与者是被诊断患有1型糖尿病的儿童和青少年的母亲、父亲或其他主要照顾者,他们会前往九个儿科糖尿病中心之一进行例行季度检查。

调查问卷共获得了 1144 名儿童(诊断时的平均年龄为 6.7 [3.6] 岁;46.5% 为女性)及其家庭的数据。在孩子确诊后的第一年,母亲的职业地位反映在带薪工作时间上显著降低(P < 0.001)。总体而言,15.1% 的母亲停止工作,11.5% 的母亲减少工作时间。学龄前儿童的母亲尤其受到影响。父亲的工作状态几乎没有变化(P =0.75)。

A : 父母在孩子诊断为1型糖尿病之前和之后的第一年的就业状况。B : 母亲在孩子确诊前和确诊后第一年的就业状况。

A : 在孩子被诊断为 1 型糖尿病后的第一年,以前全职工作的母亲和父亲的就业状况发生了变化。B : 在孩子被诊断为 1 型糖尿病后的第一年,以前全职工作的母亲的就业状况发生了变化。

将近一半的家庭(46.4%)报告说遭受了中度到严重的经济损失。与2003年早些时候的一项类似研究相比,2018年对母亲的显著负面职业后果和对家庭的经济负担保持不变(P = 0.590.31)

综上所述,新诊断为糖尿病的幼儿的母亲在其职业状况中经历了负面影响。这种对母亲的不平等会对她们的心理健康和未来的经济状况产生长期的负面影响。迫切需要采取行动以减轻家庭负担,并提供专业、社会和监管支持,尤其是对患有糖尿病的幼儿的母亲。

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