Baidu
map

神经科指南

订阅

MedSci主页 / 所有栏目 / 神经科指南

新型冠状病毒肺炎疫情防控期间遗传性共济失调患者管理策略专家共识

2020-08-30 中国医师协会神经内科医师分会 中华医学遗传学杂志.2020,37(4):359-366.

遗传性共济失调

2019年12月以来，在湖北省武汉市陆续发现了一系列传染性极强的不明原因肺炎病例，后经证实为感染"严重急性呼吸道综合症冠状病毒2型(severe acute respiratory syndrome

中文标题：

新型冠状病毒肺炎疫情防控期间遗传性共济失调患者管理策略专家共识

发布机构：

中国医师协会神经内科医师分会

发布日期：

2020-08-30

简要介绍：

2019年12月以来，在湖北省武汉市陆续发现了一系列传染性极强的不明原因肺炎病例，后经证实为感染"严重急性呼吸道综合症冠状病毒2型(severe acute respiratory syndrome coronavirus 2，SARS-CoV-2)"所致的"2019冠状病毒病(corona virus disease 2019，COVID-19)"。SARS-CoV-2病毒能够侵犯人体肺部等多个系统，中枢神经系统受累者会表现出一系列的神经症状，容易误诊漏诊，从而增加了COVID-19扩散的风险。遗传性共济失调(hereditary ataxia)是一大类具有高度的临床和遗传异质性、病死率和病残率较高的神经系统退行性疾病。鉴于疫情的严重性，政府采取的一系列防控措施，使得许多患者去医院的随访和诊疗受到了限制，对于患者的心身健康产生了较大的影响。为使患者在疫情防控期间得到规范的管理，中国医师协会神经内科医师分会神经遗传专委会特别制定了本共识，旨在帮助患者共克时艰，平安度过防疫期。

 

相关资料下载：
[AttachmentFileName(sort=1, fileName=新型冠状病毒肺炎疫情防控期间遗传性共济失调患者管理策略专家共识.pdf)] GetToolGuiderByIdResponse(projectId=1, id=7b4491c00206a48c, title=新型冠状病毒肺炎疫情防控期间遗传性共济失调患者管理策略专家共识, enTitle=, guiderFrom=中华医学遗传学杂志.2020,37(4):359-366., authorId=0, author=, summary=2019年12月以来，在湖北省武汉市陆续发现了一系列传染性极强的不明原因肺炎病例，后经证实为感染"严重急性呼吸道综合症冠状病毒2型(severe acute respiratory syndrome , cover=https://img.medsci.cn/2021223/1614012702453_2020535.jpg, journalId=0, articlesId=null, associationId=1243, associationName=中国医师协会神经内科医师分会, associationIntro=, copyright=0, guiderPublishedTime=Sun Aug 30 00:00:00 CST 2020, originalUrl=, linkOutUrl=, content=<div class="one_info2" style="color: #373737;"> <div id="all_content"> <div class="editor_mirror editor_mirror_del"> <p>2019年12月以来，在湖北省武汉市陆续发现了一系列传染性极强的不明原因肺炎病例，后经证实为感染"严重急性呼吸道综合症冠状病毒2型(severe acute respiratory syndrome coronavirus 2，SARS-CoV-2)"所致的"2019冠状病毒病(corona virus disease 2019，COVID-19)"。SARS-CoV-2病毒能够侵犯人体肺部等多个系统，中枢神经系统受累者会表现出一系列的神经症状，容易误诊漏诊，从而增加了COVID-19扩散的风险。遗传性共济失调(hereditary ataxia)是一大类具有高度的临床和遗传异质性、病死率和病残率较高的神经系统退行性疾病。鉴于疫情的严重性，政府采取的一系列防控措施，使得许多患者去医院的随访和诊疗受到了限制，对于患者的心身健康产生了较大的影响。为使患者在疫情防控期间得到规范的管理，中国医师协会神经内科医师分会神经遗传专委会特别制定了本共识，旨在帮助患者共克时艰，平安度过防疫期。</p> </div> </div> </div> <div class="box_info" style="color: #373737;">&nbsp;</div>, tagList=[TagDto(tagId=100636, tagName=遗传性共济失调)], categoryList=[CategoryDto(categoryId=17, categoryName=神经科, tenant=100), CategoryDto(categoryId=85, categoryName=指南&解读, tenant=100), CategoryDto(categoryId=21100, categoryName=达仁堂循证e学界, tenant=100)], articleKeywordId=0, articleKeyword=, articleKeywordNum=6, guiderKeywordId=100636, guiderKeyword=遗传性共济失调, guiderKeywordNum=6, haveAttachments=1, attachmentList=null, guiderType=0, guiderArea=共识, guiderLanguage=0, guiderRegion=3, opened=0, paymentType=, paymentAmount=10, recommend=0, recommendEndTime=null, sticky=0, stickyEndTime=null, allHits=7014, appHits=49, showAppHits=0, pcHits=387, showPcHits=6965, likes=0, shares=6, comments=5, approvalStatus=1, publishedTime=Tue Feb 23 00:55:10 CST 2021, publishedTimeString=2020-08-30, pcVisible=1, appVisible=1, editorId=2020535, editor=qiushida2, waterMark=0, formatted=0, memberCards=[], isPrivilege=0, deleted=0, version=2, createdBy=null, createdName=qiushida2, createdTime=Tue Feb 23 00:51:50 CST 2021, updatedBy=2020535, updatedName=qiushida2, updatedTime=Sat Jan 06 13:56:58 CST 2024, courseDetails=[], otherVersionGuiders=[], isGuiderMember=false, ipAttribution=, attachmentFileNameList=[AttachmentFileName(sort=1, fileName=新型冠状病毒肺炎疫情防控期间遗传性共济失调患者管理策略专家共识.pdf)])
新型冠状病毒肺炎疫情防控期间遗传性共济失调患者管理策略专家共识.pdf
下载请点击：
评论区 (4)
#插入话题
  1. [GetPortalCommentsPageByObjectIdResponse(id=963813, encodeId=57b596381390, content=学习一下，攒积分, beContent=null, objectType=guider, channel=null, level=null, likeNumber=94, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://img.medsci.cn/20210508/6270fab9eee845de91cbb5cc4020bb60/2c826d0e4f6a4c419f67c355e59e4db9.jpg, createdBy=d0065179602, createdName=146f39aam85暂无昵称, createdTime=Sat May 08 21:55:56 CST 2021, time=2021-05-08, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=959409, encodeId=aec0959409b4, content=感谢, beContent=null, objectType=guider, channel=null, level=null, likeNumber=102, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=58d25483500, createdName=ms9000001532925281, createdTime=Thu Apr 22 15:48:10 CST 2021, time=2021-04-22, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=926518, encodeId=eeda92651851, content=学习学习, beContent=null, objectType=guider, channel=null, level=null, likeNumber=116, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=http://thirdwx.qlogo.cn/mmopen/vi_32/Q0j4TwGTfTKibA62IFMeUJEmSyIe8DvYFeERuOsfrRd8iano7nENqQU1dRR3tqeQOUL3eqgYgEZRT2t2iaEsib0JEw/132, createdBy=66771693911, createdName=易水河, createdTime=Tue Feb 23 06:44:33 CST 2021, time=2021-02-23, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=926508, encodeId=77bb926508f9, content=感谢, beContent=null, objectType=guider, channel=null, level=null, likeNumber=132, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://img.medsci.cn/20210127/50a003c4097845e182c08afd64d8a509/bd766dfebe9c40e0bca2dae964601bdc.jpg, createdBy=22de5454917, createdName=carrotlyl, createdTime=Tue Feb 23 06:38:20 CST 2021, time=2021-02-23, status=1, ipAttribution=)]
    2021-05-08 146f39aam85暂无昵称

    学习一下，攒积分

    0

  2. [GetPortalCommentsPageByObjectIdResponse(id=963813, encodeId=57b596381390, content=学习一下，攒积分, beContent=null, objectType=guider, channel=null, level=null, likeNumber=94, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://img.medsci.cn/20210508/6270fab9eee845de91cbb5cc4020bb60/2c826d0e4f6a4c419f67c355e59e4db9.jpg, createdBy=d0065179602, createdName=146f39aam85暂无昵称, createdTime=Sat May 08 21:55:56 CST 2021, time=2021-05-08, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=959409, encodeId=aec0959409b4, content=感谢, beContent=null, objectType=guider, channel=null, level=null, likeNumber=102, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=58d25483500, createdName=ms9000001532925281, createdTime=Thu Apr 22 15:48:10 CST 2021, time=2021-04-22, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=926518, encodeId=eeda92651851, content=学习学习, beContent=null, objectType=guider, channel=null, level=null, likeNumber=116, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=http://thirdwx.qlogo.cn/mmopen/vi_32/Q0j4TwGTfTKibA62IFMeUJEmSyIe8DvYFeERuOsfrRd8iano7nENqQU1dRR3tqeQOUL3eqgYgEZRT2t2iaEsib0JEw/132, createdBy=66771693911, createdName=易水河, createdTime=Tue Feb 23 06:44:33 CST 2021, time=2021-02-23, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=926508, encodeId=77bb926508f9, content=感谢, beContent=null, objectType=guider, channel=null, level=null, likeNumber=132, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://img.medsci.cn/20210127/50a003c4097845e182c08afd64d8a509/bd766dfebe9c40e0bca2dae964601bdc.jpg, createdBy=22de5454917, createdName=carrotlyl, createdTime=Tue Feb 23 06:38:20 CST 2021, time=2021-02-23, status=1, ipAttribution=)]
    2021-04-22 ms9000001532925281

    感谢

    0

  3. [GetPortalCommentsPageByObjectIdResponse(id=963813, encodeId=57b596381390, content=学习一下，攒积分, beContent=null, objectType=guider, channel=null, level=null, likeNumber=94, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://img.medsci.cn/20210508/6270fab9eee845de91cbb5cc4020bb60/2c826d0e4f6a4c419f67c355e59e4db9.jpg, createdBy=d0065179602, createdName=146f39aam85暂无昵称, createdTime=Sat May 08 21:55:56 CST 2021, time=2021-05-08, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=959409, encodeId=aec0959409b4, content=感谢, beContent=null, objectType=guider, channel=null, level=null, likeNumber=102, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=58d25483500, createdName=ms9000001532925281, createdTime=Thu Apr 22 15:48:10 CST 2021, time=2021-04-22, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=926518, encodeId=eeda92651851, content=学习学习, beContent=null, objectType=guider, channel=null, level=null, likeNumber=116, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=http://thirdwx.qlogo.cn/mmopen/vi_32/Q0j4TwGTfTKibA62IFMeUJEmSyIe8DvYFeERuOsfrRd8iano7nENqQU1dRR3tqeQOUL3eqgYgEZRT2t2iaEsib0JEw/132, createdBy=66771693911, createdName=易水河, createdTime=Tue Feb 23 06:44:33 CST 2021, time=2021-02-23, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=926508, encodeId=77bb926508f9, content=感谢, beContent=null, objectType=guider, channel=null, level=null, likeNumber=132, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://img.medsci.cn/20210127/50a003c4097845e182c08afd64d8a509/bd766dfebe9c40e0bca2dae964601bdc.jpg, createdBy=22de5454917, createdName=carrotlyl, createdTime=Tue Feb 23 06:38:20 CST 2021, time=2021-02-23, status=1, ipAttribution=)]
    2021-02-23 易水河

    学习学习

    0

  4. [GetPortalCommentsPageByObjectIdResponse(id=963813, encodeId=57b596381390, content=学习一下，攒积分, beContent=null, objectType=guider, channel=null, level=null, likeNumber=94, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://img.medsci.cn/20210508/6270fab9eee845de91cbb5cc4020bb60/2c826d0e4f6a4c419f67c355e59e4db9.jpg, createdBy=d0065179602, createdName=146f39aam85暂无昵称, createdTime=Sat May 08 21:55:56 CST 2021, time=2021-05-08, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=959409, encodeId=aec0959409b4, content=感谢, beContent=null, objectType=guider, channel=null, level=null, likeNumber=102, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=58d25483500, createdName=ms9000001532925281, createdTime=Thu Apr 22 15:48:10 CST 2021, time=2021-04-22, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=926518, encodeId=eeda92651851, content=学习学习, beContent=null, objectType=guider, channel=null, level=null, likeNumber=116, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=http://thirdwx.qlogo.cn/mmopen/vi_32/Q0j4TwGTfTKibA62IFMeUJEmSyIe8DvYFeERuOsfrRd8iano7nENqQU1dRR3tqeQOUL3eqgYgEZRT2t2iaEsib0JEw/132, createdBy=66771693911, createdName=易水河, createdTime=Tue Feb 23 06:44:33 CST 2021, time=2021-02-23, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=926508, encodeId=77bb926508f9, content=感谢, beContent=null, objectType=guider, channel=null, level=null, likeNumber=132, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://img.medsci.cn/20210127/50a003c4097845e182c08afd64d8a509/bd766dfebe9c40e0bca2dae964601bdc.jpg, createdBy=22de5454917, createdName=carrotlyl, createdTime=Tue Feb 23 06:38:20 CST 2021, time=2021-02-23, status=1, ipAttribution=)]
    2021-02-23 carrotlyl

    感谢

    0

相关指南

2015遗传性共济失调诊断与治疗专家共识

中华医学会神经病学分会 · 2016-04-27

拓展阅读

2015遗传性共济失调诊断与治疗专家共识

中华医学会神经病学分会 · 2016-04-27

Baidu
map
Baidu
map
Baidu
map