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A systematic review and recommendations for prom instruments for older people with frailty in emergency care

期刊: JOURNAL OF PATIENT-REPORTED OUTCOMES, 2022; 6 (1)

Introduction The current service metrics used to evaluate quality in emergency care do not account for specific healthcare outcome goals for older peo......

Patient experiences with patient-reported outcome measures in metastatic breast cancer trials: qualitative interviews

期刊: JOURNAL OF PATIENT-REPORTED OUTCOMES, 2022; 6 (1)

Background Patient-reported outcome (PRO) measures are critical for assessing treatment benefit of anticancer treatments. Although PRO measures have b......

Patient-reported outcome measures for life engagement in mental health: a systematic review

期刊: JOURNAL OF PATIENT-REPORTED OUTCOMES, 2022; 6 (1)

Background Life engagement in the context of mental health is a broad term that describes positive health aspects relating to cognition, vitality, mot......

A longitudinal validation of the EQ-5D-5L and EQ-VAS stand-alone component utilising the Oxford Hip Score in the Australian hip arthroplasty population

期刊: JOURNAL OF PATIENT-REPORTED OUTCOMES, 2022; 6 (1)

Purpose To evaluate the measurement properties of the Oxford Hip Score (OHS), EQ-5D-5L utility index and EQ-5D-5L visual analogue scale (EQ-VAS) in pa......

The endometriosis daily diary: qualitative research to explore the patient experience of endometriosis and inform the development of a patient-reported outcome (PRO) for endometriosis-related pain

期刊: JOURNAL OF PATIENT-REPORTED OUTCOMES, 2022; 6 (1)

Purpose Endometriosis is a chronic disorder of the female reproductive system characterized by debilitating symptoms, particularly endometriosis-relat......

Agreement between older adult patient and caregiver proxy symptom reports

期刊: JOURNAL OF PATIENT-REPORTED OUTCOMES, 2022; 6 (1)

Background Proxy report is essential for patients unable to complete patient-reported outcome (PRO) measures themselves and potentially beneficial whe......

Conceptualisation of a measurement framework for Needs-based Quality of Life among patients with multimorbidity

期刊: JOURNAL OF PATIENT-REPORTED OUTCOMES, 2022; 6 (1)

Background Multimorbidity is both an individual and societal problem. For society, patients with multimorbidity increase healthcare costs. For the ind......

Sociocultural adaptation, translation and pre-testing of the Kannada version of Vanderbilt Head and Neck Symptom Survey 2.0

期刊: JOURNAL OF PATIENT-REPORTED OUTCOMES, 2022; 6 (1)

Background Head and neck cancer (HNC) patients often undergo radiation therapy as part of their treatment. However, radiation therapy can have many si......

Development of a set of patient reported outcome measures for patients with benign liver tumours and cysts: patient focus groups and systematic review

期刊: JOURNAL OF PATIENT-REPORTED OUTCOMES, 2022; 6 (1)

BackgroundPatient reported outcome measures (PROMs) may be useful for patients with benign liver tumours and cysts (BLTC) to evaluate the impact of tr......

Do patient-reported outcome measures measure up? A qualitative study to examine perceptions and experiences with heart failure proms among diverse, low-income patients

期刊: JOURNAL OF PATIENT-REPORTED OUTCOMES, 2022; 6 (1)

Background The Kansas City Cardiomyopathy Questionnaire (KCCQ) is a Patient-Reported Outcome Measure (PROM) used to evaluate the health status of pati......

Reliability and validity of the Japanese version of the Pediatric Quality of Life Inventory Infant Scales

期刊: JOURNAL OF PATIENT-REPORTED OUTCOMES, 2022; 6 (1)

Background: PedsQL Infant Scales (PedsQL-I) are used to assess parent-reported health-related quality of life for children younger than 2 years. We de......

An electronic patient-reported outcome created based on my needs is worth using: an explorative qualitative study investigating young people's opinions for a health assessment tool

期刊: JOURNAL OF PATIENT-REPORTED OUTCOMES, 2022; 6 (1)

Background Young people in different healthcare settings are positive about using electronic patient-reported outcomes (ePROs), which are meant to inc......

Impact of clinical symptoms and diagnosis: the electronic Person-Specific Outcome Measure (ePSOM) development programme

期刊: JOURNAL OF PATIENT-REPORTED OUTCOMES, 2022; 6 (1)

Introduction Regulatory bodies recommend that outcome measures used in Alzheimer's disease (AD) clinical trials capture clinically meaningful changes ......

The EORTC QLU-C10D discrete choice experiment for cancer patients: a first step towards patient utility weights

期刊: JOURNAL OF PATIENT-REPORTED OUTCOMES, 2022; 6 (1)

Background The European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Utility-Core 10 Dimensions (QLU-C10D) is a novel can......

Digital patient-reported outcomes in inflammatory bowel disease routine clinical practice: the clinician perspective

期刊: JOURNAL OF PATIENT-REPORTED OUTCOMES, 2022; 6 (1)

Background Use of digital health services, such as digital patient-reported outcomes, depends on many different human factors as well as digital desig......

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