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白血病你站住,你知道自己治疗费用多少吗?

2016-11-30 MedSci整理 血液病专家/中国实用儿科杂志/广东省人力

白血病,是恶性血液系统疾病,也被老百姓们俗称为“血魔”。白血病是一类造血干细胞恶性克隆性疾病。克隆性白血病细胞因为增殖失控、分化障碍、凋亡受阻等机制在骨髓和其他造血组织中大量增殖累积,并浸润其他非造血组织和器官,同时抑制正常造血功能。临床可见不同程度的贫血、出血、感染发热以及肝、脾、淋巴结肿大和骨骼疼痛。关于这个病的治疗费用,往往令患者与其家属望而却步,也有人认为治疗白血病的费用是一个“无底洞”。

今早不知道大家的朋友圈是不是被一条消息刷屏了,反正小编是被刷屏了,大概就是这样的:



《罗一笑,你给我站住》是罗尔为自己患白血病的女儿所写,文笔感人至深,数以万计的网友通过各种方式进行捐赠,希望为这个悲伤的家庭送去温暖。据说还有好心的机构表示转发一次就捐一块!

据金羊网报道,11月29日,笑笑的父亲罗尔在接受记者采访时表示,认识的不认识的人都通过各种途径给他汇钱,“出乎意料”,同时“非常感激”,现在笑笑的治疗费已经足够了,很感谢大家的关注,希望大家不要再给他“砸钱”了

罗尔本人也承认“某好心机构的公众号也加入了次行列,可以帮其吸粉,同时也可以帮助笑笑,就同意了”。

对于这件事你怎么看?

出于对知识的渴求,小编学习了一下这个白血病白血病是恶性血液系统疾病,也被老百姓们俗称为“血魔”。白血病是一类造血干细胞恶性克隆性疾病。克隆性白血病细胞因为增殖失控、分化障碍、凋亡受阻等机制在骨髓和其他造血组织中大量增殖累积,并浸润其他非造血组织和器官,同时抑制正常造血功能。临床可见不同程度的贫血、出血、感染发热以及肝、脾、淋巴结肿大和骨骼疼痛。

关于这个病的治疗费用,往往令患者与其家属望而却步,也有人认为治疗白血病的费用是一个“无底洞”。但是白血病的治疗费用需要多少,首先要看患者的患病类型。有一些类型的白血病治疗花费金额确实巨大,而且治疗效果也不好,对于这类患者,医生会如实向患者家属介绍病情,患者可根据自己的经济条件决定是否还要积极治疗。

有一些白血病类型的治疗效果非常好,费用也可控,比如M3型白血病,治疗较为成熟,一般的患者费用可以控制在15万元之内,有保险的患者,还有可以有一定程度的报销。

此外,急性淋巴细胞白血病的患者在完全缓解后给予维持治疗,总治疗时间为2.5-3.5年;急性非淋巴细胞白血病患儿则为高强度短疗程的化疗,不需要维持治疗;总治疗时间约为6-8个月。部分类型的儿童急性白血病治疗效果也很好,而且儿童治疗药物用量少,费用还会比成人低一些。从所有类型的白血病患者来看,排除病情非常危重、体质差感染炎症严重的情况外,多数患者在第一次化疗期间的花费不会超过5万元,第一年全部的治疗费用在20万元之内基本都可以完成治疗。

除了考虑病情类型不同外,还要考虑患者的体质基础如何如果有的患者体质差,可能在治疗期间发生严重的感染,这就会多花出很多额外的费用。

另外是否有要求使用一些价格比较高的药物的情况也是很重要的一个因素。一些疑难病症的治疗,依赖于国内外知名药企的专利药物。企业付出了较高的研发成本,获得了药物专利,当然药物价格不会低。有些特效药品的专利虽然过期,但知名药企的生产品质仍然遥遥领先,这同样使之有足够的高定价主动权,这些都会影响整个治疗过程中的费用。

这是官方就本次的数据:

实际上,在全国费用都是相似的!报销比例是很高的!

进行骨髓移植,是否要“财力雄厚”?

首先,骨髓移植的患者必需要先达到完全缓解,所需费用约10万元至30万元不等,骨髓移植从“入仓”到“出仓”所需经费在30万元至40万元,移植后因为面临着移植物抗宿主病、感染等诸多严重并发症,每年所需医疗费用在20万元以上。骨髓移植的患者和家庭在精神、情感、机体上的代价远高于药物治疗的患者。此外,骨髓移植还必需面临肝静脉阻塞病、移植物抗宿主病、弥漫性肺泡出血、植入失败、严重感染等诸多难关,即使移植成功也不代表将来不会复发。

不过也并非所有的白血病患者都要进行骨髓移植!近年来白血病的药物治疗不断获得突破性进展,目前儿童急性淋巴细胞白血病的治愈率已达80%,急性早幼粒细胞白血病的治愈率早已超过90%,白血病通过药物治疗即可治愈早已成为现实,也不是想象的那样是不治之症。

最后是否有保险也是具体支出的很大成因,据《南方都市报》报道,今年6月,广东省印发《完善城乡大病保险的实施意见》征求意见稿,将大病保险保障对象扩大到全体职工,全省大病报销比例不低于50%,医疗费用越高,支付比例越高。省有关部门还加紧落实政府全额资助贫困人口参保,将贫困人口全部纳入重特大疾病救助范围,并首创比价交易规则,设法降低昂贵的过期专利药价格。这项政策在此不多加赘述,大家有兴趣的可以自己去官网看看,关于大病医保等相关的报销机制。

随着儿童急性髓细胞白血病(AML)病理机制研究以及治疗水平的不断提高,儿童AML治愈率已得到明显改善。国际多中心协作组儿童AML治疗最新数据显示,儿童AML总体存活率(OS)平均达65%以上,最高达80%以上;3年以上无事件生存率(EFS)平均达50%以上[(49.0±4.0)%~(66.7±4.0)%],见表1。


儿童AML治疗疗效的提高归功于治疗前精准的危险度分级、有针对性的分层治疗方案、疾病活动度动态监测如微小残留病(MRD)监测、时机合适的造血干细胞移植(HSCT)及恰当的支持治疗等。WHO新的分类方案(2008版)强调,新诊断的AML需完善遗传学检查后方可开始化疗。准确识别儿童AML的复发危险因素,判断预后,根据预后分型治疗,可极大地提高患儿存活率。

最后,希望每一位血液病患者有顽强对抗疾病的信念,也希望每一位患者都能够早日摆脱疾病,早日康复!

拓展阅读:白血病相关的拓展阅读:

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    2016-12-06 1e185577m68(暂无匿称)

    知道了

    0

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    2016-12-03 老段

    赞一下,学习了!

    0

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    2016-12-02 Jackie Li

    收藏

    0

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    2016-12-02 杨柳青青

    孩子是无辜的

    0

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    2016-12-01 弱智儿童向太阳

    为孩子祈福

    0

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    2016-11-30 lovetcm

    这是赤裸裸的利用人的良心

    0

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    2016-11-30 请叫我小猪猪

    无论如何小朋友是无辜的,为她祈福

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    2016-11-30 为了宝宝

    白血病挺人才两空的

    0

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